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CHAPTER VI:

REFERENCES

Code Manuals and Record Layouts

  1. Depry F, Hands I, Pinder R, Yoder V, Havener L, (eds). NAACCR Data Exchange Standard. Springfield, IL: North American Association of Central Cancer Registries, January 2021. Revised February. 2021, March 2021, April 2021. https://www.naaccr.org/xml-data-exchange-standard/.

    Earlier Volumes:
    Depry F, Hands I, Pinder R, Yoder V, Havener L, (eds). NAACCR Data Exchange Standard. Springfield, IL: North American Association of Central Cancer Registries, July 2020 https://www.naaccr.org/xml-data-exchange-standard/.
    Havener LA (ed). Standards for Cancer Registries, Volume I: Data Exchange Standards and Record Descriptions. Version 18, Springfield, Ill.: North American Association of Central Cancer Registries; March 2018. (This and earlier versions available electronically at http://www.naaccr.org/StandardsandRegistryOperations/VolumeI.aspx.)
  2. Standards for Oncology Registry Entry STORE 2022. Chicago: American College of Surgeons Commission on Cancer; 2022. Electronic version available at https://www.facs.org/quality-programs/cancer-programs/national-cancer-database/ncdb-call-for-data/cocmanuals/. (Accessed May 31, 2022.)

    Earlier versions:
    Standards for Oncology Registry Entry (STORE) Chicago: American College of Surgeons Commission on Cancer; 2018. Electronic version available at https://www.facs.org/~/media/files/quality%20programs/cancer/ncdb/store_manual_2018.ashx. (Accessed May 31, 2020.)

    Earlier manuals:
    Facility Oncology Registry Data Standards (FORDS): Revised for 2016. Chicago: American College of Surgeons Commission on Cancer; 2002. (Electronic version available at https://www.facs.org/quality-programs/cancer/ncdb/registrymanuals/cocmanuals/fordsmanual.)
    (Available electronically at https://www.facs.org/quality-programs/cancer/ncdb/registrymanuals/cocmanuals/fordsolder):
    • Commission on Cancer. Facility Oncology Registry Data Standards (FORDS): Revised for 2016. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. Facility Oncology Registry Data Standards (FORDS): Revised for 2015. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. Facility Oncology Registry Data Standards (FORDS): Revised for 2013. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. Facility Oncology Registry Data Standards (FORDS): Revised for 2012. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. Facility Oncology Registry Data Standards (FORDS): Revised for 2011. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. FORDS Facility Oncology Registry Data Standards: Revised for 2010. Chicago: American College of Surgeons Commission on Cancer; 2002.
    • Commission on Cancer. FORDS: Oncology Registry Data Standards, Revised for 2009. Chicago: American College of Surgeons; 2002.
    • Commission on Cancer. FORDS: Oncology Registry Data Standards, Revised for 2007. Chicago: American College of Surgeons; 2002.
    • Commission on Cancer. FORDS: Oncology Registry Data Standards, Revised for 2004. Chicago: American College of Surgeons; 2002.
    • Commission on Cancer. FORDS: Oncology Registry Data Standards. Chicago: American College of Surgeons; 2002.
  3. Adamo M, Groves C, Dickie L, Ruhl J. (September 2021). SEER Program Coding and Staging Manual 2022. National Cancer Institute, Bethesda, MD 20892. Revision: November 2021. (Electronic version available at https://seer.cancer.gov/tools/codingmanuals/).

    Earlier Versions:
    • Adamo MB, Dickie LA, Ruhl JL, (eds). SEER Program Coding and Staging Manual 2016. National Cancer Institute; Bethesda, Md. NIH Pub. No. 16-5581.
      Adamo MB, Dickie LA, Ruhl JL, (eds). SEER Program Coding and Staging Manual 2015. National Cancer Institute; Bethesda, Md. NIH Pub. No. 15-5581
    • Adamo MB, Dickie LA, Ruhl JL, (eds). SEER Program Coding and Staging Manual 2014. National Cancer Institute; Bethesda, Md. NIH Pub. No. 14-5581.
    • Adamo MB, Johnson CH, Ruhl JL, Dickie LA, (eds). SEER Program Coding and Staging Manual 2013. National Cancer Institute; Bethesda, Md. NIH Pub. No. 13-5581.
    • Adamo MB, Johnson CH, Ruhl JL, Dickie LA, (eds). SEER Program Coding and Staging Manual 2012. National Cancer Institute; Bethesda, Md. NIH Pub. No. 12-5581. 
    • Adamo MB, Johnson CH, Ruhl JL, Dickie LA, (eds). SEER Program Coding and Staging Manual 2011. National Cancer Institute; Bethesda, Md. NIH Pub. No. 11-5581.
    • Adamo MB, Johnson CH (eds). SEER Program Coding and Staging Manual 2010. National Cancer Institute; NIH Pub. No. 10-5581. Bethesda, Md. (Revised September 2010.)
    • Johnson CH, Adamo M (eds). The SEER Program Coding and Staging Manual 2007. Bethesda, Md.: National Cancer Institute; January 2007. NIH Pub. No. 07-5581. (Revised September 2008.)
    • Johnson CH (ed). The SEER Program Coding and Staging Manual 2004. Bethesda, Md.: National Cancer Institute; January 2004. NIH Pub. No. 04-5581.
    • Fritz A, Ries L (eds). The SEER Program Code Manual. Third Edition. Bethesda, Md: National Cancer Institute; January 1998 (updated January 2003). NIH Pub. No. 98-1999.
  4. Johnson C, Peace S, Adamo P, Fritz A, Percy-Laury A, Edwards BK. Multiple Primary and Histology Coding Rules January 2007, (Revised September, 2011). (Electronic version available at: http://seer.cancer.gov/tools/mphrules/download.html.)
  5. Canadian Cancer Registry Redesign Team. Canadian Cancer Registry System Guide. 2014 Edition. Available by contacting The Health Client Services Unit, Health Statistics Division, Statistics Canada, [email protected] (613) 951-1746. Questions should be directed to the following: Manager of the Canadian Cancer Registry, Health Statistics Division, Statistics Canada, Ottawa, Tel: (613) 951-0757.

Stage and Extent of Disease Manuals

  1. Seiffert, JE (ed). SEER Program Comparative Staging Guide for Cancer: Major Cancer Sites, Version 1.1. Bethesda, Md.: National Cancer Institute; June 1993. NIH Pub. No. 93-3640.
  2. Amin MB, Edge S, Greene F, Byrd DR, Brookland RK, Washington MK, Gershenwald JE, Compton CC, Hess KR, et al. (Eds.). AJCC Cancer Staging Manual (8th edition). Springer International Publishing: American Joint Commission on Cancer; 2017.
Earlier Versions:
Edge SB, et al. (eds). AJCC Cancer Staging Manual Seventh Edition. New York: Springer; 2010. (Editions 1, 2, 3, and 4, were published by Lippincott-Raven under the title Manual for Staging of Cancer. Edition 5 was published by Lippincott-Raven under the title AJCC Cancer Staging Manual. Edition 6 was published by Springer Verlag as AJCC Cancer Staging Manual).
  1. Ruhl JL, Callaghan C, Schussler N (eds.) Extent of Disease (EOD) 2018 General Coding Instructions, National Cancer Institute, Bethesda, MD, 2021. https://seer.cancer.gov/tools/staging/eod/

    Earlier Version:
    Fritz A, Ries L, SEER Extent of Disease--1998: Codes and Coding Instructions, Third Edition. Bethesda, Md.: National Cancer Institute; January 1998. NIH Pub. No. 98-2313.
Earlier Versions:
  1. Shambaugh EM, Ries LG, and Young JL. Extent of Disease: New 4-Digit Schemes: Codes and Coding Instructions. National Cancer Institute; March 31, 1984.
  2. Cancer Surveillance, Epidemiology, and End Results Reporting (SEER) Program. SEER Extent of Disease: Codes and Coding Instructions. Bethesda, Md.: National Cancer Institute; April 1977.
  1. Shambaugh EM, Weiss MA (eds). Summary Staging Guide: Cancer Surveillance, Epidemiology, and End Results Reporting SEER Program. National Institutes of Health; April 1977. NIH Pub. No 86-2313.
  2. Young JL Jr., Roffers SD, Ries LAG, Fritz AG, Hurlbut AA (eds). SEER Summary Staging Manual 2000. Bethesda, Md.: National Cancer Institute; 2001. NIH Pub. No. 01-4969.
  3. Collaborative Stage Work Group of the American Joint Committee on Cancer. Collaborative Stage Data Collection System User Documentation and Coding Instructions, Version 02.05.50. Published by American Joint Committee on Cancer (Chicago, Ill). Available at http://cancerstaging.org/cstage/Pages/default.aspx.

    Earlier Versions:
    • Collaborative Stage Work Group of the American Joint Committee on Cancer. Collaborative Stage Data Collection System User Documentation and Coding Instructions, Version 02.04.40. Published by American Joint Committee on Cancer (Chicago, Ill).
    • Collaborative Staging Task Force of the American Joint Committee on Cancer. Collaborative Stage Data Collection System, Version 02.03.02. Chicago, Ill.: American Joint Committee on Cancer and Bethesda, Md.: U.S. Department of Health and Human Services. NIH publication number 04-5496.
    • Collaborative Staging Task Force of the American Joint Committee on Cancer. Collaborative Staging Manual and Coding Instructions, Version 01.04.00. Chicago, Ill.: American Joint Committee on Cancer and Bethesda, Md.: U.S. Department of Health and Human Services; October 2007. NIH publication number 04-5496.
    • Collaborative Stage Task Force of the American Joint Committee on Cancer. Collaborative Staging Manual and Coding Instructions, Version 01.03.00. Chicago, Ill.: American Joint Committee on Cancer and Bethesda, Md.: U.S. Department of Health and Human Services; September 2006.
    • Collaborative Staging Task Force of the American Joint Committee on Cancer, Collaborative Staging Manual and Coding Instructions, Version 01.00.00, Incorporating minor page corrections through July 15, 2005, (Version 01.02.00). NIH Publication Number 04-5496.
    • Collaborative Staging Task Force of the American Joint Committee on Cancer. Collaborative Staging Manual and Coding Instructions, Version 1.0. Chicago, Ill.: American Joint Committee on Cancer and Bethesda, Md.: U.S. Department of Health and Human Services, 2004. NIH Pub. No. 04-5496.

Disease Classifications

  1. World Health Organization. ICD-10: International Statistical Classification of Diseases and Related Health Problems, 10th Revision. Second Edition. 3 vols. Geneva: World Health Organization; 2004. (Originally published in 1992.)
  2. National Center for Health Statistics and Centers for Medicare and Medicaid Services. ICD-9-CM: The International Classification of Diseases, Clinical Modification, Ninth Revision. Washington, D.C.: U.S. Public Health Service; 1991.
  3. International Classification of Diseases for Oncology ICD-O-3, Third Edition, First Revision. ICD-O-3 Online. Geneva: World Health Organization, 2013. ICD-O-3.2, revised 2020.

    Earlier Version: Fritz A, Percy C, Jack A, Shanmugaratnam K, Sobin L, Parkin D, Whelaln S (eds). International Classification of Diseases for Oncology, Third Edition. Geneva: World Health Organization; 2000.
Earlier Versions:
  1. Percy C, VanHolten V, and Muir C (eds). International Classification of Diseases for Oncology, Second Edition. Geneva: World Health Organization; 1990.
  2. World Health Organization. International Classification of Diseases for Oncology, First Edition. Geneva: World Health Organization; 1976.
  3. Percy C, VanHolten V (eds). International Classification of Diseases for Oncology, Field Trial Edition. Geneva: World Health Organization; March 1988.

    Percy C, VanHolten V (eds). International Classification of Diseases for Oncology, Morphology, Field Trial Edition. Geneva: World Health Organization; 1987.
  1. World Health Organization. Manual of the International Statistical Classification of Diseases, Injuries, and Causes of Death, Ninth Revision. Geneva: World Health Organization; 1977.

Occupation and Industry Classification and Coding

  1. Centers for Disease Control and Prevention. Recommendations for Occupation and Industry Data Items. (NPCR program document). Atlanta: Centers for Disease Control and Prevention; July 20, 1995. (Note: This material is a memo to the Chair, NAACCR Uniform Data Standards Committee, dated July 20, 1995, including a report of a June 18, 1995, meeting.)
  2. Guidelines for Reporting Occupation and Industry on Death Certificates. Hyattsville, Md.: National Center for Health Statistics; March 1988. PHS Pub. No. 88-1149.
  3. U.S. Census Bureau, Housing and Household Economic Statistics Division. Alphabetical Indexes of Industries and Occupations (Census 2010, 2002, 2000). Available at: http://www.census.gov/hhes/www/ioindex/view.html .
  4. United States Department of Commerce Bureau of the Census. 1990 Census of Population and Housing, Alphabetical Index of Industries and Occupations. Washington, D.C.: U.S. Government Printing Office; 1992. (codes available at: http://www.bls.gov/nls/quex/r1/y97r1cbka1.pdf)
  5. Instruction Manual Part 19: Industry and Occupation Coding for Death Certificates, Effective 2003. Hyattsville, Md.: National Center for Health Statistics; 2002. Available at: http://www.cdc.gov/nchs/data/dvs/pt19manB1.pdf.
  6. Instruction Manual Part 19: Industry and Occupation Coding for Death Certificates, Effective 1999. Hyattsville, Md.: National Center for Health Statistics; 1999. Available at: http://www.cdc.gov/nchs/data/dvs/pt19manB1.pdf.

Other References

  1. Cancer Program Standards 2012, 1.2.1: Ensuring Patient-Centered Care. American College of Surgeons Commission on Cancer; 2011. Available at: https://www.facs.org/quality-programs/cancer/coc/standards.

    Earlier version:
    • Cancer Program Standards, Revised Edition. Chicago: American College of Surgeons Commission on Cancer; 2009.
  2. North American Association of Central Cancer Registries. Standard Data Edits. In: Seiffert JE, Capron S, and Tebbell J (eds). Standards for Cancer Registries. Volume IV. Sacramento, Cal: North American Association of Central Cancer Registries; April 4, 1996. Updated metafiles corresponding to changes in data standards are issued periodically. These are available from the Cancer Data Standards section of the NAACCR Website at: http://www.naaccr.org/StandardsandRegistryOperations/VolumeIV.aspx.
  3. Centers for Disease Control and Prevention. Program Announcement No. 426: 1994 National Program of Cancer Registries (NPCR). (NPCR program document.) Atlanta: Centers for Disease Control and Prevention; March 1994.
  4. [North] American Association of Central Cancer Registries. Working Group on Pre-Invasive Cervical Neoplasia and Population-Based Cancer Registries: Final Subcommittee Report. April 1993, Rockville, Md. Adopted by the [N]AACCR Executive Board May 1993 and amended November 1993.)
  5. Surveillance, Epidemiology, and End Results Program. SEER Edit Documentation. Bethesda, Md.: National Institutes of Health, National Cancer Institute; May 1993.
  1. Cancer Registries Amendment Act, Public Law. 102-515, 106 Stat 3372 (October 24, 1992).
  2. International Agency for Research on Cancer, World Health Organization, International Association of Cancer Registries, European Network of Cancer Registries. International Rules for Multiple Primary Cancers (ICD-O Third Edition), Lyon, France: IARC, 2004, (http://www.iacr.com.fr/MPrules_july2004.pdf).

    Jensen OM, Parkin DM, MacLennan R, Muir CS, and Skeet RG (eds). Cancer Registration: Principles and Methods. Lyon, France: International Agency for Research on Cancer; 1991. IARC Scientific Pub. No. 95.
  3. Shambaugh E, editor-in-chief. SEER Program Self-Instructional Manual for Cancer Registrars. Bethesda, Md.: National Institutes of Health, National Cancer Institute. (Various years.)
    • Book One: Objectives and Functions of a Cancer Registries, Hospital and Central (Population-Based). Third Edition; 1999.
    • Book Two: Cancer Characteristics and Selection of Cases. Third Edition; 1991.
    • Book Three: Tumor Registrar Vocabulary: The Composition of Medical Terms. Second Edition; 1993.
    • Book Four: Human Anatomy as Related to Tumor Formation. Second Edition; 1993.
    • Book Five: Abstracting a Medical Record: Patient Identification, History, and Examinations. Second Edition; 1995.
    • Book Six: Classification for Extent of Disease; 1977.
    • Book Seven: Statistics and Epidemiology for Tumor Registrars; 1994.
    • Book Eight: Antineoplastic Drugs. Third Edition; 1993.
    Surveillance, Epidemiology and End Results (SEER) Program. SEER*Rx: Interactive Antineoplastic Drugs Database. Version 1.5.0; September 2010.
  4. Centers for Disease Control and Prevention. Program Announcement No. 00027: National Program of Cancer Registries. (NPCR program document.) Atlanta: Centers for Disease Control and Prevention; January 2000.
  5. Menck HR, Gress DM, Griffin, Mulvihill L, Hofferkamp J, Johnson CH, Pearson M. Cancer Registry Management: Principles and Practices for Hospital and Central Registries. Third Edition. Dubuque, Iowa: Kendall Hunt; 2011.

    Earlier version:
    • Hutchison C, Menck H, Burch M, Gottschalk R (eds). Cancer Registry Management: Principles and Practice. Second Edition. Dubuque, Iowa: Kendall Hunt; 2004. See also: Menck HR, Deapen D, Phillips JL, Tucker TD. Central Cancer Registries: Design, Management and Use. Second Edition. Dubuque, Iowa: Kendall/Hunt Publishing Company: 2007.
  6. See NAACCR Standards Implementation Guidelines: https: //www.naaccr.org/implementation-guidelines/

    Earlier Version:
    See NAACCR Standards Implementation Guidelines: http://www.naaccr.org/LinkClick.aspx?fileticket=XUJpEypVnuw%3d&tabid=126&mid=466 Accessed April 3, 2012.
  7. Swerdlow SH, Campo E, Harris NL, Jaffe ES, Pileri SA, Stein H, Thiele J, Vardiman JW (eds.) WHO Classification of Tumours of Haematopoietic and Lymphoid Tissues. Lyon, France: International Agency for Research on Cancer; 2008.
  8. U.S. Census Bureau. American Community Survey 2009 Code List. Available at: http://www.census.gov/acs/www/Downloads/data_documentation/CodeLists/2009_ACS_Code_Lists.pdf